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dc.contributor.authorIzmirly, Peter
dc.contributor.authorBuyon, Jill
dc.contributor.authorBelmont, H Michael
dc.contributor.authorSahl, Sara
dc.contributor.authorWan, Isabella
dc.contributor.authorSalmon, Jane
dc.contributor.authorAskanase, Anca
dc.contributor.authorBathon, Joan M
dc.contributor.authorGeraldino-Pardilla, Laura
dc.contributor.authorAli, Yousaf
dc.contributor.authorGinzler, Ellen
dc.contributor.authorPutterman, Chaim
dc.contributor.authorGordon, Caroline
dc.contributor.authorHelmick, Charles
dc.contributor.authorParton, Hilary
dc.date.accessioned2023-02-08T19:28:28Z
dc.date.available2023-02-08T19:28:28Z
dc.date.issued2019-10-30
dc.identifier.citationIzmirly P, Buyon J, Belmont HM, Sahl S, Wan I, Salmon J, Askanase A, Bathon JM, Geraldino-Pardilla L, Ali Y, Ginzler E, Putterman C, Gordon C, Helmick C, Parton H. Population-based prevalence and incidence estimates of primary discoid lupus erythematosus from the Manhattan Lupus Surveillance Program. Lupus Sci Med. 2019 Oct 30;6(1):e000344. doi: 10.1136/lupus-2019-000344. Erratum in: Lupus Sci Med. 2019 Nov 14;6(1):e000344corr1. PMID: 31798917; PMCID: PMC6827754.en_US
dc.identifier.issn2053-8790
dc.identifier.doi10.1136/lupus-2019-000344
dc.identifier.pmid31798917
dc.identifier.urihttp://hdl.handle.net/20.500.12648/8308
dc.description.abstractEpidemiological data for primary discoid lupus erythematosus (pDLE) remain limited, particularly for racial/ethnic populations in the USA. The Manhattan Lupus Surveillance Program (MLSP) is a population-based retrospective registry of cases with SLE and related diseases including pDLE in Manhattan and was used to provide estimates of the prevalence and incidence of pDLE across major racial/ethnic populations.
dc.description.abstractMLSP cases were identified from rheumatologists, hospitals and population databases. Two case definitions were used for pDLE: the primary case definition which was any physician diagnosis found in the chart and a secondary case definition which was limited to cases diagnosed by a rheumatologist and/or dermatologist. Rates among Manhattan residents were age-adjusted, and capture-recapture analyses were conducted to assess case under-ascertainment.
dc.description.abstractBased on the primary definition, age-adjusted overall prevalence and incidence rates of pDLE among Manhattan residents were 6.5 and 0.8 per 100 000 person-years, which increased to 9.0 and 1.3 after capture-recapture adjustment. Prevalence and incidence rates were approximately two and six times higher, respectively, among women compared with men (p<0.0001). Higher prevalence was also found among non-Latino blacks (23.5) and Latinos (8.2) compared with non-Latino whites (1.8) and non-Latino Asians (0.6) (p<0.0001). Incidence was highest among non-Latino blacks (2.4) compared with all other racial/ethnic groups. Similar relationships were observed for the secondary case definition.
dc.description.abstractData from the MLSP provide epidemiological estimates for pDLE among the major racial/ethnic populations in the USA and reveal disparities in pDLE prevalence and incidence by sex and race/ethnicity among Manhattan residents.
dc.language.isoenen_US
dc.relation.urlhttps://lupus.bmj.com/content/6/1/e000344.longen_US
dc.rights© Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY. Published by BMJ.
dc.rightsAttribution-NonCommercial-NoDerivatives 4.0 International*
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/*
dc.subjectDiscoid Lupus Erythematosusen_US
dc.subjectRegistryen_US
dc.subjectepidemiologyen_US
dc.titlePopulation-based prevalence and incidence estimates of primary discoid lupus erythematosus from the Manhattan Lupus Surveillance Program.en_US
dc.typeArticle/Reviewen_US
dc.source.journaltitleLupus science & medicineen_US
dc.source.volume6
dc.source.issue1
dc.source.beginpagee000344
dc.source.endpage
dc.source.countryEngland
dc.description.versionVoRen_US
refterms.dateFOA2023-02-08T19:28:29Z
html.description.abstractEpidemiological data for primary discoid lupus erythematosus (pDLE) remain limited, particularly for racial/ethnic populations in the USA. The Manhattan Lupus Surveillance Program (MLSP) is a population-based retrospective registry of cases with SLE and related diseases including pDLE in Manhattan and was used to provide estimates of the prevalence and incidence of pDLE across major racial/ethnic populations.
html.description.abstractMLSP cases were identified from rheumatologists, hospitals and population databases. Two case definitions were used for pDLE: the primary case definition which was any physician diagnosis found in the chart and a secondary case definition which was limited to cases diagnosed by a rheumatologist and/or dermatologist. Rates among Manhattan residents were age-adjusted, and capture-recapture analyses were conducted to assess case under-ascertainment.
html.description.abstractBased on the primary definition, age-adjusted overall prevalence and incidence rates of pDLE among Manhattan residents were 6.5 and 0.8 per 100 000 person-years, which increased to 9.0 and 1.3 after capture-recapture adjustment. Prevalence and incidence rates were approximately two and six times higher, respectively, among women compared with men (p<0.0001). Higher prevalence was also found among non-Latino blacks (23.5) and Latinos (8.2) compared with non-Latino whites (1.8) and non-Latino Asians (0.6) (p<0.0001). Incidence was highest among non-Latino blacks (2.4) compared with all other racial/ethnic groups. Similar relationships were observed for the secondary case definition.
html.description.abstractData from the MLSP provide epidemiological estimates for pDLE among the major racial/ethnic populations in the USA and reveal disparities in pDLE prevalence and incidence by sex and race/ethnicity among Manhattan residents.
dc.description.institutionSUNY Downstateen_US
dc.description.departmentRheumatologyen_US
dc.description.degreelevelN/Aen_US
dc.identifier.journalLupus science & medicine


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© Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY. Published by BMJ.
Except where otherwise noted, this item's license is described as © Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY. Published by BMJ.